Frontotemporal Dementia (FTD)
FTD is a devastating disease that is usually diagnosed during midlife.
After a friend of mine was diagnosed with FTD, I came alongside his wife to support her as the caregiver and to learn more about FTD. To support the family, I needed to advocate for them, recognize how the disease affects individuals and families, and inform others.
I designed a storyboard, an infographic, and an eLearning module that told the real-life story of my friend's experience as she dealt with a husband suffering from FTD. Soon after the deployment of this eLearning, he succumbed to this devastating disease. Since then, the actor Bruce Willis was diagnosed with FTD, and this announcement has provided more public awareness.
This eLearning project is dedicated in memory of my friend, "Bob" Brown, who suffered from FTD, and his wife, "Amy" Brown, who was his caregiver. After "Bob" finally received his diagnosis, he lived for only four more years. He passed away a year after this project was completed.
In February 2023, the Association for Frontotemporal Degeneration posted more information about FTD. This disease was in the news when Bruce Willis was diagnosed with Frontotemporal Dementia.
A dear friend of mine informed me that her husband was diagnosed with FTD in 2018. I witnessed her struggles and the difficulties that her children have had to endure. When "Bob" wandered away from home absentmindedly, my family joined the search efforts. We watched the rapid deterioration of "Bob." Not knowing much about FTD, I talked with "Amy," researched the subject, and attended a University of Pennsylvania conference on FTD. Because of its "devastation" on my friend's life and the tremendous impact on my own family, I became an FTD spokesperson in my church community. I realized there was a huge need to inform people about how FTD impacts the caregiver and the patient, and how the community could help.
My goal was to offer a personal perspective for caregivers, families, and friends of a patient with Frontotemporal Dementia (FTD), raise awareness, and direct them to helpful resources.
I wrote the script and storyboarded real-life situations my friend's family endured, designed the course, recorded the voiceover, and developed it in Articulate Storyline. The eLearning told the Brown family's emotional story and provided facts, symptoms, causes, and additional resources about FTD. I also designed an infographic providing helpful steps after an FTD diagnosis.
Objectives:
Write a storyboard that shares a story to inform the learner about the facts, symptoms, and causes of FTD, a degenerative brain disease.
Use a knowledge check after the story to determine whether the learner retained basic facts about FTD.
Provide resources to support caregivers of a person with FTD.
Learner Objectives:
Describe basic behavioral changes and symptoms that commonly occur in a person diagnosed with FTD.
Identify the brain areas affected by FTD.
Recognize common caregiver struggles and frustrations for those who care for a person with FTD.
I received great feedback on my storytelling from my friend, "Amy" Brown, and from IDOL Courses. As a result of this eLearning development, IDOL Courses issued me the Level 1: eLearning Credly badge. My storytelling skills were also highlighted in Robin Sargent's book, "The Do It Messy Approach: A Step-by-Step Guide For Instructional Designers and Online Learning Developers."
Link to her book on Amazon
Link to her book from IDOL Courses and extra book resources
This was the first course that I designed and developed in Articulate Storyline. My course design skills have since improved, but I kept it here in honor of the Brown family and to continue raising public awareness of FTD.
Storyboard
eLearning
Infographic
FTD Storyboard
Select each slide to view this storyboard.
This eLearning project is dedicated in memory of my friend, "Bob" Brown, who suffered from FTD, and his wife, "Amy" Brown, who was his caregiver for many challenging years. After "Bob" finally received his diagnosis, he lived only four more years.
Actor Bruce Willis was recently diagnosed with this devastating disease.
FTD eLearning
FTD Infographic